{"id":165,"date":"2024-12-19T23:52:00","date_gmt":"2024-12-19T23:52:00","guid":{"rendered":"https:\/\/hilizzy.com\/guide\/?post_type=courses&#038;p=165"},"modified":"2025-02-12T17:09:16","modified_gmt":"2025-02-12T17:09:16","slug":"how-to-help-someone-in-denial-about-dementia","status":"publish","type":"courses","link":"https:\/\/lizzycare.com\/resources\/course\/how-to-help-someone-in-denial-about-dementia\/","title":{"rendered":"What Do I Do if My Loved One is in Denial of Their Memory Loss?"},"content":{"rendered":"<div class=\"nolwrap\">\n<div class=\"wp-block-columns d-none d-md-inline-flex is-layout-flex wp-container-core-columns-is-layout-9d6595d7 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:75%\">\n<h4 class=\"wp-block-heading\"><em><br><em><br>Lizzy Care is reimagining dementia care and providing the resources for today\u2019s needs and tomorrow\u2019s challenges.<\/em><\/em><\/h4>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-vertically-aligned-center is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:25%\">\n<div class=\"wp-block-buttons is-content-justification-right is-layout-flex wp-container-core-buttons-is-layout-765c4724 wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button text-decoration-none is-style-outline popmake-196 is-style-outline--1\"><a class=\"wp-block-button__link has-white-color has-text-color has-background has-link-color has-text-align-center wp-element-button\" style=\"background-color:#3a82d4\"><strong>Get Started<\/strong><\/a><\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div style=\"height:40px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<h2 class=\"wp-block-heading\">Denial is very common in early dementia<\/h2>\n\n\n\n<p>A very common theme in providing care for older adults, particularly those who are experiencing cognitive decline, is denial and refusal of care. This can manifest in many ways, from total lack of awareness, to \u201cit\u2019s not that bad yet,\u201d to outright refusal to accept their condition.<\/p>\n\n\n\n<!--more-->\n\n\n\n<p>The implications of ignoring cognitive decline and subsequently delaying memory care can be serious:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Your loved one continues to carry out daily tasks that may be dangerous, such as driving or going out alone.<\/li>\n\n\n\n<li>Their diminished judgment may make them vulnerable to scams.<\/li>\n\n\n\n<li>They may be making their own and others\u2019 lives difficult, as well as putting undue pressure on you or your family members.<\/li>\n\n\n\n<li>They delay the implementation of <a href=\"https:\/\/hilizzy.com\/guide\/course\/key-benefits-early-intervention-for-dementia\/\" target=\"_blank\" rel=\"noopener\">effective treatment plans<\/a>, from specialized therapies to clinical trials.<\/li>\n\n\n\n<li>It may accelerate <a href=\"https:\/\/hilizzy.com\/guide\/course\/moving-loved-one-to-nursing-home-what-to-consider\/\" target=\"_blank\" rel=\"noopener\">admission into a nursing home<\/a> or senior care facility, even though this may not be what they want or what is best for them.<\/li>\n<\/ul>\n\n\n\n<p>Lizzy Care is reframing what it means to live with and care for someone with cognitive decline, empowering families to make better, informed decisions about their loved one\u2019s memory care. Here you will learn how to address denial and move forward to provide your loved one with the best care possible.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>My loved one is in denial about their memory loss\u2014what do I do?<\/strong><\/h3>\n\n\n\n<p><a href=\"https:\/\/hilizzy.com\/resources\/course\/my-family-is-in-denial-of-my-loved-ones-need-for-memory-care-what-do-i-do-2\/\" data-type=\"link\" data-id=\"https:\/\/hilizzy.com\/resources\/course\/my-family-is-in-denial-of-my-loved-ones-need-for-memory-care-what-do-i-do-2\/\" target=\"_blank\" rel=\"noopener\"><strong><span style=\"text-decoration: underline\"><em>Learn how to talk with family members who are in denial of a mother\/father\/spouse&#8217;s memory loss.<\/em><\/span><\/strong><\/a><\/p>\n\n\n\n<p>Recognizing they are in denial is a great first step, as it mobilizes you and your family into action to ensure your loved one can receive the care they need.&nbsp;<\/p>\n\n\n\n<p>One of the most common things we hear from Lizzy Care families is that their loved one responds to their concerns with \u201cI don\u2019t need help yet.\u201d This response in itself demonstrates how complicated denial around cognitive decline can be:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Depending on the state of their cognitive decline, they may not have the full capabilities to understand it.<\/li>\n\n\n\n<li>They are fearful of what it means for their quality of life, as well as what it means for their family members.<\/li>\n\n\n\n<li>There is a stigma around receiving a dementia diagnosis and they don\u2019t want to be treated differently.<\/li>\n<\/ul>\n\n\n\n<p>Understanding where they fall on this denial spectrum will inform how you speak to them about their condition. It\u2019s natural to be worried that you will upset or anger a person you care deeply about but dealing with the conversation as early as possible can make sure that your loved one still has input in what they want in terms of care, treatment, and support.<\/p>\n\n\n\n<div class=\"wp-block-buttons popmake-196 is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-16018d1d wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button has-custom-width wp-block-button__width-75 popmake-196\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" style=\"background-color:#ee715d\"><strong>Start working with a memory care expert<\/strong><\/a><\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Preparing to talk to your loved one about their memory care needs<\/strong><\/h3>\n\n\n\n<p><strong>1. Speak with your family first.<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>You\u2019re all on the same team.<\/strong> You want to see your loved one thrive for as long as possible. You also want to be there for one another to provide calm and comfort. <a href=\"https:\/\/hilizzy.com\/resources\/course\/it-takes-a-village\/\" data-type=\"link\" data-id=\"https:\/\/hilizzy.com\/resources\/course\/it-takes-a-village\/\" target=\"_blank\" rel=\"noopener\">Remind each other of these shared goals as you move through this process<\/a>.<\/li>\n\n\n\n<li><strong>Confirm that the changes you have noticed have been noticed by others. <\/strong>You may need to keep a diary to track these changes and then bring it with you to share with your loved one.<\/li>\n\n\n\n<li><strong>Align on how you want to communicate with your loved one.<\/strong> Agree on whether you want to discuss your loved one\u2019s health together as a family or only one person. Then, plan ahead and leave adequate time.<\/li>\n<\/ul>\n\n\n\n<p><strong>2. Plan conversation starters.<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u201cHave you noticed the same changes in your behavior that I have?\u201d<\/li>\n\n\n\n<li>\u201cWould you like me to tell you what changes I have noticed in your behavior?\u201d<\/li>\n\n\n\n<li>\u201cLately, I have noticed that you have been having trouble doing X or trouble remembering Y, and I am getting concerned. I\u2019d like to talk to you about it, can we have a conversation?\u201d<\/li>\n\n\n\n<li>\u201cI\/we are concerned about what happens if you have a medical event or if you need additional support. Can we talk about what you\u2019re looking for as you age and how I\/we can best support you?\u201d<\/li>\n\n\n\n<li>\u201cCould we talk about your wishes if you get to the point that you can\u2019t live alone? We want to make sure we honor them.\u201d<\/li>\n\n\n\n<li>\u201cWhat kinds of events\u2013if they happened in your life\u2013might make you think it was time to get some support?\u201d<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Having the conversation with your loved one<\/strong><\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Create a calm and comfortable environment with no distractions. <\/strong>This should be an environment where you believe your loved one will be the most receptive and focused, likely in their own home, and at a time of day that best works for them.<\/li>\n\n\n\n<li><strong>Go into the conversation without expectations. <\/strong>It may take a few conversations to get them to fully understand and accept moving forward.<\/li>\n\n\n\n<li><strong>Talk in short sentences using a simple vocabulary but remember they are adults.<\/strong> Make sure you pause between thoughts to let things sink in and give your loved one a chance to respond. Be kind, gentle, and supportive, and consider what Lizzy Care\u2019s memory care coach Darryl describes as <em>The Approach to Yes<\/em>.<br><br>Imagine your conversation with your loved one as two people trying to solve a common problem rather than two people fighting over a decision.<\/li>\n<\/ul>\n\n\n\n<p class=\"has-background\" style=\"background-color:#f9a5ae\"><strong>Wrong way:<\/strong> \u201cDad, you need to move into a memory care facility. Your memory is getting bad, and it is making it hard for all of us.\u201d<\/p>\n\n\n\n<p class=\"has-background\" style=\"background-color:#ade0bc\"><strong>Better:<\/strong> \u201cDad, I want to talk to you about something. We\u2019re concerned that your needs in the future may not be met if everything stays the same. We don\u2019t want to do something that is not in keeping with your wishes.\u201c<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Acknowledge that this is not easy.<\/strong> No matter how much you plan and how sensitive you try to be, your loved one may not be ready or willing to discuss the changes you\u2019ve noticed. They may become angry or defensive. Don\u2019t force the issue. You can return to the issue in a later conversation.&nbsp;<\/li>\n\n\n\n<li><strong>Reframe the conversation to be less about you helping them, but them helping you.<\/strong> There may come a time when they can\u2019t help make these decisions together and it\u2019s better to start putting plans in place now to ensure you can honor their wishes.<\/li>\n\n\n\n<li><strong>Gently bring up the negative consequences of delaying care. <\/strong>You can use concrete examples of how their life will change if they continue to ignore their cognitive decline.<\/li>\n\n\n\n<li><strong>Keep a good sense of humor. <\/strong>Bringing levity to a difficult conversation can help you and your loved one work through the discomfort more easily.<\/li>\n\n\n\n<li><strong>Look out for non-verbal signs of anxiety or irritation.<\/strong> Dementia and memory conditions can affect how a person communicates. Your loved one may find it difficult to complete their thoughts, so be patient. Make sure that only one person is talking at a time and that you\u2019re looking at your loved one when talking to them.<\/li>\n\n\n\n<li><strong>Gain consent to speak with their doctor or ask if you can join them on their next visit.<\/strong> Having someone to take notes and ask questions will be beneficial for documentation and enable you to advocate for their care.<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>Enlist the support of a memory care coach&nbsp;<\/strong><\/h3>\n\n\n\n<p>\u201cDecisions around major life choices often are difficult conversations to have,\u201d says Darryl, a Board-certified health coach who was the primary caregiver for his wife for 13 years at home. \u201cIt helps to have a neutral party who can help families discuss communication strategies, express frustrations, and provide accountability for moving forward on a care plan.\u201d<\/p>\n\n\n\n<p>The memory care journey will have its twists and turns, and the problems that arise will never be solved overnight. One of the most important aspects of the coaching role is to be a guide and support you to make informed decisions as well as brainstorm strategies as this problem evolves.&nbsp;<\/p>\n\n\n\n<p>A coach can help you reflect on what is working and how you might adapt your tone and approach to meet the circumstances. Plus, a coach will help you create a personalized plan, keeping your loved one involved as much as possible to facilitate effective care.<\/p>\n\n\n\n<div class=\"wp-block-buttons popmake-196 is-content-justification-center is-layout-flex wp-container-core-buttons-is-layout-16018d1d wp-block-buttons-is-layout-flex\">\n<div class=\"wp-block-button has-custom-width wp-block-button__width-75 popmake-196\"><a class=\"wp-block-button__link has-white-color has-text-color has-background wp-element-button\" style=\"background-color:#ee715d\"><strong>Get Started Working With A Coach<\/strong><\/a><\/div>\n<\/div>\n\n\n\n<h3 class=\"wp-block-heading\"><strong>What\u2019s next?<\/strong><\/h3>\n\n\n\n<p>Addressing your loved one\u2019s denial of their cognitive decline will be a difficult task, but with the right planning and support, you will be able to move forward and get your loved one the care they need.<\/p>\n\n\n\n<p>One of the most important aspects of this journey is not going it alone: Speak with a Lizzy Care coach who is an expert in memory care. You and your family will get personalized support and guidance, be empowered to broach these complicated subjects, as well as build a personalized plan that meets your loved one\u2019s needs. With Lizzy Care, feel confident in making memory-care decisions that ensure your loved one has the quality of life they want and deserve.<\/p>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Denial is very common in early dementia A very common theme in providing care for older adults, particularly those who are experiencing cognitive decline, is denial and refusal of care. This can manifest in many ways, from total lack of awareness, to \u201cit\u2019s not that bad yet,\u201d to outright refusal to accept their condition. [&#8230;]<\/p>\n<p><a class=\"btn btn-secondary understrap-read-more-link\" href=\"https:\/\/lizzycare.com\/resources\/course\/how-to-help-someone-in-denial-about-dementia\/\">Read More&#8230;<span class=\"screen-reader-text\"> from What Do I Do if My Loved One is in Denial of Their Memory Loss?<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":847,"parent":0,"menu_order":30,"comment_status":"closed","ping_status":"closed","template":"","meta":{"content-type":"","om_disable_all_campaigns":false,"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[3,7,8,9,194,16,19],"tags":[60,85,83,58,79,80,90,89,61,86,82,87],"topics":[154,191,153,195,193],"class_list":["post-165","courses","type-courses","status-publish","has-post-thumbnail","hentry","category-alzheimers","category-communication","category-dementia","category-denial","category-family","category-reluctance","category-support","tag-alzheimers","tag-behavior","tag-cognitive-decline","tag-dementia","tag-denial","tag-family","tag-frontotemporal-dementia","tag-ftd","tag-health","tag-mental-health","tag-stress","tag-vascular-dementia","topics-alzheimers","topics-communication","topics-dementia","topics-denial","topics-family"],"_links":{"self":[{"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/courses\/165","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/courses"}],"about":[{"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/types\/courses"}],"author":[{"embeddable":true,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/comments?post=165"}],"version-history":[{"count":11,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/courses\/165\/revisions"}],"predecessor-version":[{"id":854,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/courses\/165\/revisions\/854"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/media\/847"}],"wp:attachment":[{"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/media?parent=165"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/categories?post=165"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/tags?post=165"},{"taxonomy":"topics","embeddable":true,"href":"https:\/\/lizzycare.com\/resources\/wp-json\/wp\/v2\/topics?post=165"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}